I am so sorry for what happened to you.
Every day since I have lived with guilt and regret. Regret for not advocating that I knew something wasn’t right. I feel guilt over not holding you enough. Guilt that maybe it was something I did or didn’t do to make you so incomplete.
Had we done the surgeries would you have survived?
I was so scared to have a severely handicapped child but I knew I was strong enough to do it and I was willing to learn, but I was also sad knowing none of our lives would ever be the same. After the seizures started and more tests were done we learned that there was so much more wrong with your tiny perfectly imperfect body. That you would never breathe on your own, taste food, drink through your mouth. I didn’t know what to do. On one hand there was the doctor saying you won’t survive the multiple surgeries you needed but on the other hand saying he’ll do them if we ask. I held you, I cried. What I hated the most was the feeling of just wanting it to end.
Your brothers so little didn’t understand why mom and dad were always gone, why you couldn’t come home, why you were born with so many broken pieces. I go back to that day in my mind and it tears my heart out over and over. I remember praying for you to breathe, I remember begging god to let you live, that I would deal with whatever came next that you needed. But you didn’t and I was too afraid of seeing your face after you stopped breathing, I was scared of having nightmares if I looked so I didn’t, I gave you to the nurse and ran out of the hospital. And that is my biggest regret. I should have stayed and I am so sorry. I love you and you will always be my first daughter, my third child.
I honor you as much as I possibly can.
We hang your stocking at Christmas we have balloons on your birthday and plant flowers at the cemetery every February 18. I light candles by your picture whenever I feel you, I stare at the maple tree in the front yard that I planted when I was pregnant with you, knowing it is the age you should be. I will always wonder who you’d be today. I can’t wait to see you again, somewhere over the rainbow.
*** My daughter was born frank breach at 41 weeks and lived for 52 days. She had congenital heart disease, a damaged brain stem from birth and needed a tracheotomy to breathe as well as a tube in her stomach to eat. She needed multiple surgeries but also needed to be healthy to survive them. We took her off life support hoping she would breathe on her own but didn’t.
Rest in peace my angel
Lily Emma Olive Hall
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