Lost and Found

October 18 2011

 

Where is it all coming from, can it really be simply hormones, is it uncertainty of not knowing

Is it the fear that sits at the back of my mind, guilt of sadness though happiness is all around

Where is the sunshine, the laughter and love for life, we are so lucky yet feel stuck in strife

Trapped down a whole, the dirt pouring in the dust making it harder to breathe

The thoughts of loss, where do they come from, why do I feel this way?



 

November 10 2011

 

How do I share my fear; when my biggest is looking weak

How do I say I’m sinking; when you rely on me to float

Its hard to breathe; yet I am holding my breathe

Waiting to see



 

January 5 2012

 

My life is on hold, my heart is a hole, you are not alone my sweet

My fear is for you but my tears are for me; your smile rarely seen is what I hold on to.

Your strength and will to fight is my way to flow thru life

This is not easy, love is harder but pain and illness, loss and death seem inevitable

We attempt to succeed, we succumb without need

Somehow we survive



 

June 30 2012

 

You are gone and I weep, most nights I cannot sleep

I think of you as I cry into my sleeve, my heart is broken, dreams are lost

My fears realized, faith is shattered

I don’t know how to feel anymore

Your life so short, felt like a lifetime, I wish I could hold you one last time

If only in my dreams



 

February 18 2017

 

Years fly by in a flash, five gone just like that, though they dragged in the moments

They seem vanished in the blink of an eye, my heartbeat painfully slow

Memory falters, though the thoughts never go

Your loss has taught me so much more than you know



 

June 1 2017

 

Hard or week, soft and strong, we wonder where do we belong

You look in the mirror that one odd day, the reflection however does not look the same

Where have you gone, who is this face

The lines show losses, loves, triumphs and defeat

The bags proof of hard sleep

Where has time gone that the reflection has become a stranger


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Lost thoughts suddenly found

 

Cleaning out a drawer, I found this piece of paper tucked into a book, I looked it over, not remembering haven written it, I read the short notes and their dates, it slowly, foggily comes back to me. I cannot believe I wrote these, I do not remember much of those hard months five years ago and am grateful to have scribbled thoughts at random, that I have now found and added two more recent reflections. Hence my title ‘Lost and Found’. The first and second back in 2011 was when I was pregnant with Lily, the third in 2012 was after her traumatic birth and hospitalization the fourth in 2012 after her death and fifth on the five year anniversary of her death on Feb. 18 of this year. I added the last one just as a current thought on feelings and life.

Thanks for reading.

Thoughts and comments always welcome and appreciated.

Sheri

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Capture your Grief in 18 days

February 1 2017

In 17 days on the 18th of February it will be 5 years since my daughter Lily died unexpectedly in my arms, I say unexpectedly not because we did not know something was wrong but we were so surprised at what we were suddenly going through and although we learned of many complications in her tiny body that made it impossible for her to live, we learned those in the matter of a week, the last week of her life, after many scans and x rays, until that point we had a healthy pregnancy followed by a traumatic delivery that was to leave her with a disability, the seriousness of it to be determined as she grew. But she did not grow, she died. She died after they told us she would never breathe on her own, after they told us she needed a tracheotomy and 3 heart surgeries but was not nearly healthy enough to survive 1 surgery  let alone 4 and so we allowed them to remove her breathing tube and she died in our arms. I remember that day like a dream. I held her so tight praying for her to breathe on her own, I remember not wanting to look at her in case her face was blue; not wanting that to be my last memory of her. I remember walking down an incredibly loud hallway that was filled with silence, back to our car, not to return to that hospital for a year but that time to see her memorial tile that now sits outside the NICU. Numb with the shock of what just happened.

So in honor of the 5th year of her lost life I will be writing my grief in poem or short story form with Carly Marie’s Capture your Grief as a guideline ( photo below).

I will post them like the poem writing challenge of December, in groups of 3, although feeling overwhelmed today I may just be able to do 1. -Sunrise

Thank you for reading,

I hope you enjoy and implore you to write for yourself, to heal yourself, to help understand your grief or life changes that leave us feeling lost and confused.

Namaste,

Sheri

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Sunrise

The dawn of a new day

The first light seeps in

the thoughts come rushing back

the ones that kept me awake

praying for morning to come quickly

The memory of the previous week

was it all a dream

can I disappear into the sunset

and return with you in the sunrise

I wish I did not have to open my eyes

I sat for hours on a bench

 watching the sun come over the tree tops

 wondering where you have gone

dreaming you were watching this morning sky with me

But alas there will be many more without you

The beauty of them has not left me blind

so I assume I will be okay

the words it paints across the sky

fill my heart with hope

that tomorrows’ sunrise

I will be fine in time

By Sheri Hall

 

 

 

Five

I cannot believe you will soon be five.

You should be turning five that is.

It hurts to re-live that night five years ago, when you were born and all there is, was silence.

No beautiful wail escaped your body.

I shook in my own tears as I was expecting this moment, as if I knew it was to happen.

Throughout my pregnancy I was terrified something was wrong. It just didn’t feel right. Then it happened, first with excitement at your arrival then with shock as you were backwards folded in half turning blue on exit. The doctor and nurses worked so hard to get you to breathe as your dad held your hand begging you to try.

I was in my own shock; all was silent. I heard nothing, I only assumed you were dead. when the doctor told me they inserted a tube finally helping you to breathe but you needed to go immediately to the NICU, that I couldn’t see you. My mind could not wrap around what was happening or why. That was the hard beginning to your short beautiful life that has changed me forever. As a mother, as a human being who vows to live empathetically and compassionately helping others. I thank you for your time in my life my beautiful child.

I wish you a happy fifth birthday this Dec 30th  wherever you are my sweet angel.

Love always and forever.

mom.

My Heartbeat Songs

“I think of you, and I’m not afraid”

poor baby

This first song, is a song  I listened to over and over on my drives to and from Children’s hospital  it gave me hope. That we’d be together through distance and time. Countless times after you left, I still do hope to see you again.

 

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hayd lily

The 1rst time I heard this song was after you died February 18 2012 17:05pm. The lyrics really struck me. Especially – “Mid February shouldn’t seem so scary it was only December, I still remember the presents, the tree, you and me”… I Miss you lily Bean.

 

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home

We heard this song often while you were here on earth but most noticeably at your bedside on the day you died. You told us you wanted to go home, and it was the hardest thing I’ve ever had to do.

 

ballon

Happy 4th Birthday my little angel xooxoxoxoxoxo

forever & always your mom

Call me Crazy

Would you call me crazy if I told you the truth?

Would you think I am weird for the tiny rituals I do to remember my lost little girl?

If you knew I wondered if every butterfly I saw was my daughter,

If you saw me cuddling the stuffed elephant I bought her 4 days before she died, that sleeps beside my bed so if  I wake up and want to hold it I can.

Do you wonder why I have so many stone Angels’ in and around my house?

Would you call me crazy if I told you I wake up in a frantic panic at times confusingly wondering where my baby is?

Would you think I am weird for gently touching the dried blood stains that I cannot wash off her blanket and hat?

If you knew I prayed for people to ask about her would you?

If you saw me talking, kissing, holding her picture, would you call me crazy?

Some might but I am ok with being a little crazy.

I am crazy for my living children, for my husband, why can’t I be crazy for my little girl whose life was so short but has touched me so hugely.

Call me crazy.

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Away on a family trip, a beautiful butterfly just like this one, landed on my 2 year old daughter Hope, who we had after Lily died. She freaked out a little because the butterfly didn’t seem to want to leave her shoulder, all I kept thinking was – It’s ok Hope its your sister.

Thanks for reading,

Namaste.

3 years.

My daughter Lily was born still.

That’s what would have been my statement had we waited any longer. She was born blue and was resuscitated; because of her beginning without oxygen she suffered brain stem damage, she was frozen for 3 days to help heal her brain damage, the first time I held my baby girl she was 4 days old. But she was alive so I was grateful.

Weeks passed with so many tests, all with a negative conclusion and after having a feeding tube surgically placed into her gastro intestine we were able to take her home. What gets me is that even though they did 3 MRI’s and multiple other scans, they missed what would eventually kill her. That was her trachea. They were so close too, they found the holes in her heart, they found the valve that pumped the wrong way, all of these would need surgeries to be fixed but she needed to be bigger and stronger to endure them, had they looked an inch higher they would have seen her abnormal trachea.

The night Lily stopped breathing and I performed CPR on her plays out as a nightmare in my memory, for the longest time I wanted to move because every time I looked at that spot on the  floor where she lay, my heart stopped, but then we replaced the carpets with hardwood and I was sad that that was now gone too, so I knew I couldn’t leave the one place she had been. When they found out about Lilys trachea, the doctor phoned and told me she would need a tracheotomy to live- that’s a hole in her throat to breathe, he said she would never have a good life, would never speak, would never taste anything and would have a shortened lifespan because of it. That surgery was on top of the other 4 heart surgeries she needed. This one would now be 1rst though. He said I will do it if you tell me to but even on a healthy baby the chance of survival is slim. What the fuck do you say to that!? We had company downstairs that day, I didn’t go back down.

We went back to the hospital 1rst thing the next day probably our 100th drive then. I suffered from ptsd every time I got into the car after she died. 4 days later we signed a do not resuscitate order, they took out her breathing tube and we held her until she died 30 minutes later at 4:55 pm on February 18 2012. I am forever haunted by this. What if we did the surgeries? Most likely she wouldn’t have died in our arms but on a table. What if we accepted the transfer to Canuck Place? We probably would have had a nicer end of her life together as a family. What if she was born still? None of these traumatizing experiences would have happened, we would have still grieved but differently I imagine. The hardest, what if she continued to breathe, what if she was that 5% that survived.

So as life goes on, as we try to understand the why’s of it all, we want to grow, we hope to learn, we try to accept, we continue to live. We chose to remember.